Lupus
Our Lupus resources are intended to support in educating a child about a Lupus diagnosis and begin the conversations about their impending treatment, or the treatment process for someone they may know.
This book is for children and caregivers to learn together about the diagnosis systemic lupus erythematosus (otherwise known as lupus). This book is intended to serve as a simple introduction to a complex diagnosis. Whether your child has been diagnosed with lupus, or they know of someone with lupus, or you are a provider caring for families going through a lupus treatment journey, this book provides you with the interactive tools to navigate this conversation.
Join us on a journey as we explore how the immune system works…
… and learn what is happening inside the body when someone has lupus.
Understand what the experience might be for someone with lupus…
…and how medical teams work to help someone with lupus.
If you are a professional and would like to view a PDF version before purchasing, reach out to us at hello@childcorefamilysupport.com and we would be happy to share.
Praise for ‘What is Lupus?’ Children’s Book:
- “This is an awesome book for introducing what lupus is to our younger patients, it will be a great resource both for our team and for our patients’ caregivers.” – Pediatric Social Worker
- “It was well done and comprehensive and SOOOOOOO needed. Thank you for yours [Caitlin] and Adrienne’s time and energy towards this invaluable teaching tool & resource.” – Pediatric Clinical Social Worker
- “We loved the book” – Child Life Specialist
Tips for reading “What is Lupus” with a child
Tips to help you:
- understand a child’s needs
- feel you have the words to answer their questions
- know how to get the most out of the book
Additional Resources
for the other procedures which may accompany treatment for lupus, or support in further understanding of the diagnosis:
Quick Talking Tips for Explaining Topics Related to Lupus:
This book is for children and caregivers to learn together about the diagnosis systemic lupus erythematosus (otherwise known as lupus). This book is intended to serve as a simple introduction to a complex diagnosis. Whether your child has been diagnosed with lupus, or they know of someone with lupus, or you are a provider caring for families going through a lupus treatment journey, this book provides you with the interactive tools to navigate this conversation.
Join us on a journey as we explore how the immune system works…
